Hearts in Harmony Foundation Presents
Join us at the 2nd annual Shake It For Shea gala, a fundraiser for Long QT Syndrome research! Featuring entertainment from the amazing Bobby Attiko Band, we would love for you to join us for a night of eating, drinking, and, of course, dancing, while supporting an incredibly worthwhile cause.
Hearts in Harmony Foundation Presents
Join us at Shake It For Shea, where we raise funds and spirits in the fights against Long QT Syndrome. Your attendance isn’t just an event–it’s a beacon of hope. Let’s dance, donate, and make a lasting difference, one beat at a time.
Long QT Syndrome (LQTS) is a heart condition that disrupts the natural rhythm and harmony of the heart's electrical system, crucial for coordinating heartbeats. At Hearts in Harmony Foundation, we equate a healthy heart to a symphony orchestra, where each beat is a note played in perfect time.
However, in LQTS, this rhythm is disturbed due to an abnormality in the heart's electrical "recharge" time between beats, known as the QT interval. When this interval is longer than normal, it can lead to a lack of harmony in the heart's rhythm, which can result in irregular heartbeats, fainting, seizures, and sudden death.
Symptoms might not always be evident, highlighting the importance of awareness and early detection. Our goal in funding research is to enhance understanding, diagnosis, and treatment of LQTS.
Long QT Syndrome (LQTS) is a heart condition that disrupts the natural rhythm and harmony of the heart's electrical system, crucial for coordinating heartbeats. At Hearts in Harmony Foundation, we liken a healthy heart to a symphony orchestra, where each beat is a note played in perfect time.
However, in LQTS, this rhythm is disturbed due to an abnormality in the heart's electrical "recharge" time between beats, known as the QT interval. When this interval is longer than normal, it can lead to a lack of harmony in the heart's rhythm, which can result in irregular heartbeats, fainting, seizures, and sudden death.
Symptoms might not always be evident, highlighting the importance of awareness and early detection. Our goal in funding research is to enhance understanding, diagnosis, and treatment of LQTS.
Shea Gloria Greenfield was born on June 20, 2022. That same day, Shea's heart stopped beating. Doctors scrambled to restart her heartbeat, which they were able to do, but they knew something was very wrong. They immediately performed an electrocardiogram (EKG) scan which revealed something called a “prolonged QT interval”, meaning that Shea’s heart’s electrical system was taking longer than usual to recharge between beats.
Genetic testing later confirmed what her doctors had feared: Shea was diagnosed with Long QT Syndrome (LQTS) Type 2, and had one of the most severe cases her doctors had ever seen in a newborn.
Faced with the stark reality of the existing treatment options, Shea's parents found themselves unwilling to accept the status quo. The journey through diagnosis and treatment opened their eyes to the urgent need for advanced research and better therapies for LQTS.
Moved by their daughter's bravery and the stories of many others facing similar challenges, they established Hearts in Harmony Foundation with a clear mission: to accelerate the development of innovative treatments and to move closer to a cure for LQTS. Their commitment is to ensure that no family feels helpless when confronting this condition, and to foster hope through action.
We are a beacon of hope for individuals and families impacted by Long QT Syndrome. Through relentless advocacy, research funding, and community support, we strive to raise awareness, improve treatment options, and ultimately find a cure.
Shea Gloria Greenfield came into this world on June 20, 2022. On that very day, Shea's hearts stopped beating. Amidst the whirlwind of those initial weeks, the heartbreaking news emerged: Shea had Long QT Syndrome (LQTS) Type 2, a particularly sever and uncertain diagnosis for a newborn.
Born to Mark and Kira Greenfield in Westport, CT, Shea is the cherished little sister to her big brother, Hayes.
LQTS, a cruel disrupter of her heart's rhythm, places her at constant risk of fainting, seizures, cardiac arrest, and sudden death. Undiagnosed cases of LQTS are thought to be the cause of many cases of sudden infant death syndrome (SIDS), and instances of athletes collapsing on the field.
Presently there's no cure for LQTS, though medications such as beta blockers and antiarrhythmics offer some risk reduction. Shea's parents are tirelessly advocating for more reliable treatment options and ultimately a cure. They're not just fighting for Shea; they're fighting for any one who shares her struggle, hoping to one day witness a world where LQTS is nothing more than a memory.
We are a beacon of hope for individuals and families impacted by Long QT Syndrome. Through relentless advocacy, research funding, and community support, we strive to raise awareness, improve treatment options, and ultimately find a cure.
Got questions? Need more information? Just want to share your thoughts? We'd love to hear from you! Reach out to us any time, and let's start making a difference together.
