Shea Gloria Greenfield was born on June 20, 2022. That same day, Shea's heart stopped beating. Doctors scrambled to restart her heartbeat, which they were able to do, but they knew something was very wrong. They immediately performed an electrocardiogram (EKG) scan which revealed something called a “prolonged QT interval”, meaning that Shea’s heart’s electrical system was taking longer than usual to recharge between beats.
Genetic testing later confirmed what her doctors had feared: Shea was diagnosed with Long QT Syndrome (LQTS) Type 2, and had one of the most severe cases her doctors had ever seen in a newborn.
Faced with the stark reality of the existing treatment options, Shea's parents found themselves unwilling to accept the status quo. The journey through diagnosis and treatment opened their eyes to the urgent need for advanced research and better therapies for LQTS.
Moved by their daughter's bravery and the stories of many others facing similar challenges, they established Hearts in Harmony Foundation with a clear mission: to accelerate the development of innovative treatments and to move closer to a cure for LQTS. Their commitment is to ensure that no family feels helpless when confronting this condition, and to foster hope through action.